WINSFORD’S MP has backed a new charter aimed at improving care for sufferers of Motor Neurone Disease (MND).

MND kills five people every day, with half of people dying with 14 months of diagnosis. This terminal disease can affect any adult at any age and has no known cure.

Stephen O’Brien has signed the Motor Neurone Disease (MND) Association’s Charter in recognition of the rights and priorities of people living with MND and their carers.

The five-point charter sets out what good care looks like for people with MND and their carers and is designed to raise awareness and understanding of this devastating disease.

Stephen said: “I was delighted to sign up to the MND Charter.

“I have seen the difference that good services make to the lives of people with MND and believe everyone with this devastating disease should be supported to maximise their quality of life and die with dignity.”

MND sufferer Liam Dwyer, is fronting the campaign, which has already received endorsements from a number of leading medical institutions.

She said: “Many people with MND die without having the right care, not having a suitable wheelchair, not having the support to communicate.

“When living with MND, one month waiting for an assessment or a piece of equipment is like a year in most people's lives, especially as half of the people with MND, die within 14 months of diagnosis.”

The MND Charter has already received endorsements from a number of leading medical institutions including Royal College of General Practitioners and Royal College of Nursing.

The charter aims to ensure people with MND and their carers have access information, care and services that allow them to maximise their quality of life and ensure they are treated with dignity.

Chris James, Director of External Affairs said “What matters most is that people with MND and their carers can access the right care, in the right place and at the right time. “We need to ensure that the needs of people with MND and the priorities for good care as set out in our charter are recognised and respected.

“We urge everyone to sign the charter to show their support.”